Well, we've made it through another day.  Had our bumps but managed to hold it together one more time.  Even with the new medication, the fixations still remain, though not as bad or as all-consuming as they were.  Now if I could just get Kate to go to sleep.  Everyone else is out, but not her.  She's still bouncing around upstairs in her room.  Tomorrow we are going to go to the school so that Del can get reacquainted with the school and the teachers he'll be working with. We'll see how it goes.  I'm going to have him go ahead and wear his uniform to the school tomorrow.  Maybe they will let him stay.  I could use a break.  Even though he's doing so much better, it still takes a toll on me.  Just the stress, waiting to see if or what will set him off and how far he will go.

Today it was missing free time this afternoon.  We had errands to run this morning.  Took Del to see the pediatrician on base to update her about his meds, ask for them to be ordered through our clinic, and let her know about his hospitalization and how he was doing since he had come home.  We left there and got the oil changed in my van.  Del did really good with waiting both times.  After that we went to commissary to pick up a few items that we needed.  He even did really well there too.  I didn't take a list since I only needed a few items.  But he did hold the coupons for me and was very good about Katey being wound up.  By the time we got home it was already just after 1pm.  Lunch was supposed to be at 11:30 and then it's quiet time until 2.  After we got done eating, it was already 1:30.  I made Katey go upstairs for her quiet time anyway (which is probably why she won't go to sleep now!) and Del laid down in the living room with me to watch TV like we normally do.  We all fell asleep, and didn't get back up until around 4.  By that time, we had missed free time, which ends at 4.

Del got really upset since he wanted to play.  It took me almost 45 minutes to get through that one.  Even though he didn't get physical, it still takes a bit toll on me.  He went back and forth between raging and crying.  I finally had to wrap him in a blanket and put him on the couch.  It probably took another 45 minutes to get him to finish calming down. So that put everything else behind.  Dinner didn't get on the table until almost 6, which put us another 45 minutes behind schedule.  Luckily, the rest of the evening is pretty open so we could get back on track.  But I didn't realize just how fixed he was on the schedule again.  Yeah me.  The schedule was to help him adjust from the hospital to being home.  Now we have just transferred to him being fixed on our schedule instead of their.  Whoopee.  Oh well, I know that he needs the routine and structure.  I just never envisioned my life like this, especially at this point.  I live by a clock, every day, all day.  It weighs me down, just thinking about it.

I thought I had come to terms with this life.  Guess just not as much as I thought.  One step forward and two back again.  And there really isn't an end in sight.